Tuesday, November 5, 2013

Post Chemo update

Hi Everyone,

I know I should be posting a blog about Bonnie's last chemo treatment or about the amazing turn out at the Susan Komen Breast Cancer run last Sunday. I wish that were the case. Those blogs will be up soon. Instead, I did want to update everyone on Bonnie's post chemo progress.

As you may know she had her last treatment last Tuesday. Friday came in with a bang, and greeted her with the usual post chemo "can I feel any worse" morning. Things progressed from there and resulted in her getting a fever on Saturday. Although she was in situation to get lots and lots of rest, the fever was persistent. Her oncologist put her on antibiotics right away as well as Tylenol which really helped to keep the fever down. Despite that, as soon as it wore off, the fever was back.

Unfortunately, things did not improve. Sunday resulted in her missing the cancer run (she was really disappointed about that) and continuing to fight a fever and persistent "chemo rash". The pain from that kept getting worse. Bonnie was in contact with her doctors and on Monday she went in to the oncologists office to get on a much stronger dose of antibiotics. While she was there, he decided that the "rash"looked more like an infection and he made the right decision in admitting her into the "Scripps Spa and Resort" - again.

Last night she was admitted and they discovered that she was again Neutropenic. This put her back on a limited diet, no visitors and antibiotics the likes of which I hope nobody else has to have. This is proving to yet again, test the patience of Bonnie and our family. She is waiting to see one of her doctors tonight, who treated her the last time she had this problem. They will discuss her options of antibiotics after she is released, and hopefully be able to determine a release date.

In addition, Dr A will perform surgery again to clean out any infection and stuff that he finds inside her. He will also remove her port. Not sure yet if another one will be replaced. It seems as though any foreign object in her body is not welcomed. I don't know the surgery date yet, but I'm thinking possibly tomorrow.

As always Bonnie is in good spirits and is hanging in there. As there are no visitors allowed, I will do my best to keep the blog updated on her progress.

Thanks so much for the love and support!
Heather

Friday, October 18, 2013

Haunted House for a Cure - Halloween Style

Hi Everyone,
 
Please see the post below from Bonnie, regarding her 13 year old friend who is psending his own money to make a fund raising haunted house:
 
 
My friend Caleb Serban-Lawler, is in the final stages of creating ( he has built everything by himself!!) a Haunt for the Cure Haunted house partially in my honor.
 
He is a 13 year old buddy of mine who attends MMS and who has seen to many of his friends struck down by cancer. This is one amazing kid-you may know his moms, Debbie Serban & Cara Lawler. He has earned every dime that he’s needed to build this four tent, at least so far, house of horrors and with no shopping done at the CRAPman’s house-although, I do plan on dropping off some extra horror.
If you would like to make a small or any size donation to his cause, please feel free to click on the link below. Thank you for your consideration and support!
 
 
Also, his Haunted House will be open to the public on:
 
Please come see "Haunt For A Cure - A Carnival of Horrors!"
 
Saturday, October 26th 7:00-9:00 p.m. and  
Thursday, October 31st at 7:00 pm-9:00 pm.
 
Location: 13479 Cool Lake Way, San Diego 92128
 
HOPE TO SEE YOU THERE!!
BONNIEh

Sunday, October 13, 2013

Chemo #5 - Who knew Chemo could be so fun?

Hi Everyone,

Here we are - almost at the end of the road. What will be there? A pot of gold? A big, green castle with a weird old man and a bunch of cool little people? How about a Cancer Free diagnosis?




Oct 8 - Chemo treatment number 5 brought about a few different things - all of them wonderful and unexpected. As you all know, my sister is very social. Although this horrifies and embarrasses me, this is Bonnie in a nut shell. She has always been very open, friendly and a real people person. People are drawn to her and I can understand why. Actually, it works out perfectly for me- I can sit quietly in the corner while she enjoys the spotlight. Today was no exception.

During the course of her treatment that day, Bonnie noticed a young woman (I will call her Jill) who had been in before as a "newby" to chemo. Her first round exposed the fear and anxiety as she and her husband sat and tried to take in this new path they were on. Bonnie couldn't help but notice how scared she looked. The next treatment, Jill was back, with a couple of girlfriends.  She noticed Bonnie and eagerly engaged in a conversation with her, as Bonnie introduced her ride to all of the "Poison Nurses" and telling stories that reduced all of them to fits of laughter. 
During that time, Bonnie was telling Jill about the blog - ok, mostly talking about my witty humor and uncanny ability to shed a sarcastic light on a serious matter, when another woman overheard the conversation. She wanted to start a blog as well....blah, blah, blah. More talk about how funny I am, how creative I am, how eager people are to read my posts. Ooops, I digress....

Turns out this new blog woman is someone Bonnie knows from NCL (her own chapter). Go figure! Seriously - we can't take her anywhere. Picture more chatter, increased volume. At one point Dr. Banerjee came in to talk to Bonnie and realized he was out of his league. Just turned around and walked away:)

This day resulted in a few things: Bonnie getting to see first hand, the positive affect she has on other people. The power of suggestion. How influential one can be when you think nobody is watching. The enduring human spirit and one's ability to overcome their fears.
Not only was this a great day for those already in treatment, but for those who are facing the start of their chemo journey. The chemo room is at the end of a hallway and is an open room where anyone in the hallway can see right into the room. Imagine being a new patient, having tremendous fears and then walking down the hallway to hear nothing but laughter and good times. What a powerful statement. I wish that scene had played out when we were first there. It just looked awful and scared me.

October 29th will bring Bonnie's last chemo treatment. I will attend this session with her. We have matching outfits, which I know will make Dr. Banerjee cringe. I can't wait!
I look forward to celebrating the end of this long road with her, with a nice lunch and an ice cold margarita! She'll have water:)

Once the chemo treatments are done, there is a chance that Bonnie may lose her eyelashes and/or eyebrows. If that happens, we will need to change the code to the garage so Marcia can't sneak in and create the Tammy Faye/Frieda Kahlo, eyelash/eyebrow look!

Hang in there for more info. I will be posting a separate blog regarding a Halloween Breast Cancer fundraiser. I hope to have it posted within the next day or two.

Talk to all soon!
Heather










Chemo #4 - What a bore!

Hi Everyone,

I've missed you all and apologize for the delay in updating the blog. It was not due to writer's block but more due to Bonnie's "cancer brain". I mean seriously - how long is she gonna use that excuse?! It's hard to believe kids are back at school, fall is in the Santa Ana winds, and Christmas is only a couple of months away. Where does the time go when you're having chemo treatments:)

September brought Bonnie's 4th chemo treatment and the reality of the end being near.


It was a fairly slow day in the chemo lounge. Thankfully Bonnie didn't have too much of a chance to annoy, I mean charm, people with her incessant pop culture filled chatter. After all, how long can you carry on a conversation about the Kardashians? Ok seriously - can you believe Lamar aka Lammie? What happened to him? And it really isn't a surprise that Kris and Bruce broke up. He's been living at the beach away from that insane asylum all summer. What did she think would happen.  Oooops, I digress.....

The one drawback during this round was that Bonnie did get a rash which resulted in her being placed on steroids. No, she did not gain a fabulous muscular body, grow facial hair or other things. Oh no, instead she became an insane woman with boundless amounts of energy. Another reason to not drink Monster or other highly caffeinated drinks that have a similar result. I'm sure she ran around the neighborhood offering to single handidly paint your entire house for free - in one day! Sorry for those of you that came into contact with her during that time. My husband does take insurance should you need therapy for the trauma this induced.

We give thanks for the lack of fever after this round. Although I do have to admit, I miss the sleepovers with my sister at the Scripps Spa and Resort.  And by sleepovers I mean no sleep while the nurses poke and prod her every half hour. They are all wonderful and very skilled people but happy we didn't have to see them this time around!

The girls are doing great! They have wonderful attitudes about this ordeal and are enjoying busy social lives outside of their busy school schedules. Below is a picture of Natalie, Brenna and my daughter Callie. Isn't she a beauty? Why yes, she does look like me:)

 
 
 
Thanks to everyone for your patience! I promise to keep up the blog for you, even if I have to take drastic measures and make stuff up!

Stay tuned for more,
Heather Gregory






Thursday, August 29, 2013

Chemo Number 3

Hi Everyone,

As some of you know, Bonnie had her 3rd chemo treatment yesterday. This was about a week later than originally planned, due in part to her recent stay at the Scripps Spa and Resort. Dr Banerji thought it would be a good idea to delay the treatment by a week, in order to give Bonnie more time to heal and increase her white blood cell count. Oh ya, he was also in Hawaii on vacation:)

Since Bonnie was released from the "spa" she has spent time resting and recovering along with the normal routine of getting the girls ready for school, raising dear Charlie (little terror) and keeping the house running. Geez - doesn't sound like any rest time to me. I'm tired just typing this!

Now that the recovery phase has started, let's keep the prayers going so she has a fighting chance of avoiding another infection and landing back in the spa. This is something to avoid at all costs, so we also want to remember to avoid her kids and the house altogether if you or your kids have been exposed to any illnesses, etc. 

As the summer winds down and the kids get in their last dose of sunshine and fun, we can officially turn our thoughts to Christmas. What??!! Is she crazy??!! I thought that too when I went to Costco 2 weeks ago and saw Christmas decorations up. I'm a huge Christmas fan , but come on. Really? It's August and hot as you know what outside! 

Enjoy the rest of your summer!
Heather
  

Sunday, August 11, 2013

Home Sweet Home.....again

Hi Everyone,

Today brings good news! Bonnie is finally home after a long and "luxurious" stay at the Scripps Memorial Hospital (aka: spa and resort).  Since last Sunday night, Bonnie has been confined to her "suite" and tied to her dance partner (aka: IV drip holder), while being injected day and night with numerous bags of various cocktails of antibiotics and God only knows what else. After staying with her for a couple of nights, she no longer had any overnight parties due to her condition having taken a turn for the worse (see previous post).

On Thursday, things really started to look up as her white blood cell count greatly improved, she was no longer neutropenic and did not have to be subjected to a restrained diet.  Once the doctors decided on her post-release protocol, they were able to comfortably release her yesterday.

Before she left I was able to at least get Natalie up there for a quick visit. It was nice to see her with her mom, as both of the girls have not been able to visit much at the hospital. This is a strong family and the girls are hanging tough! Thanks to all the family friends who help the girls stay occupied and stick to their schedules.

Tom also did a great job in getting the house disinfected and prepared for her return.  Good Job Tom!!

Now that kids are returning to school, and are exposed to more germs (as are we adults) we all need to be extra cautious when considering a visit to her. If you have been exposed at all to anyone with a cold or any type of illness, let's delay the visit.

All joking aside, Scripps Memorial and the staff there have been phenomenal. Every time I have been there with Bonnie, I was so relieved to see that she was getting care from some very special people who genuinely love what they do and who they care for. I know she feels the same way.  Needless to say, there all enjoyed her company!


Now, that Bonnie is home, she is committed to resting and recovery. For this reason, we are still limiting the amount of visitors to ensure maximum rest time. This has been an exhausting ordeal and incredibly taxing on her body. Her oncologist has rightly postponed her next chemo treatment by one week in the hopes that her body will recover more and she will be in a stronger place to handle the chemo.

She will also have to continue her antibiotic therapy and most likely with a daily visit to the doctors office to administer the drug. Those nasty bugs she caught are tough ones to kill off.

In the end, after all is said and done, she is still very fortunate to have caught this cancer early and to be able to receive great, quality care.  It's no longer the cancer we are concerned about, it's the overall process that's proving to be the most challenging. You all know Bonnie - she's a soldier and she will soldier on like always. Going thru it with a smile big enough to cause you not to notice the missing hair, the port in her chest and the exhaustion behind her eyes.

Thanks for tuning in and continuing to support and pray for bonnie. I and the family thank you from the bottom of our hearts!!!

XO, Heather Gregory

Tuesday, August 6, 2013

Scripps Memorial "Spa and Resort"

Hi Everyone,

Well, the last few days have been pretty eventful - and not in a good way:(

Sunday brought a new and more intense fever to Bonnie's ever growing list of side effects of this nasty illness. Around the middle of the day she started to feel really poorly and was directed to the emergency room by Dr. Banerji. She arrived there around 6pm and continued to feel worse by the minute. By the time I got there at 9:30pm, she was still in the emergency room and they were looking to get her on some fluids and admit her. After a much too lengthy stay in the ER, we were moved to her room (aka: Suite) at around 1:30am. She was in a lot of pain from the fever, which was really difficult for her on top of everything else. They immediately put her on a heavy dose of antibiotics and gave her some pain meds. Long story short - it was a really rough night.

The next morning (Monday) brought sunshine and an early morning visit from Dr. McDreamy. Luckily I got ZERO sleep the night before so my hair and makeup from Sunday still looked great! Oh - back to Bonnie. After weighing the options and seeing her condition, it was mutually agreed that he would remove the expanders later that afternoon. This is was very wise decision and one that I personally wish had been made the last time she got a fever. But.....so once I got back to the "spa" last night at around 7pm, she was just coming out of recovery and was looking pretty good.



The night went on to be pretty uneventful, with the exception of the excitement caused by Dez getting engaged to Chris on the Bachelorette. Boy, didn't see that coming! The pain had subsided, thanks to the meds keeping her stoned out of her mind. Bonnie was able to sleep and dreamt of french fries and a pass to go home today.

Unfortunately, we woke to some bad news. Her white blood cell count was just short of void. Almost without any to speak of. This meant that she is highly, highly susceptible to infection. She actually had become "neutropinc". She had contracted two types of bacteria - one that usually comes from hospitals (go figure) and has been a problem from the beginning (maybe from the expanders) and one that your body makes but wasn't as harmful as the other one. They called in an infectious disease doctor who has changed her antibiotics and is now restricting her to her "suite" and keeping her there until possibly Friday.

Because of the severity of the risk, there will be no visitors at the hospital and possibly the same for when she comes home. She can't have any plants or flowers around (they can carry bacteria) and she can't eat any foods that are not cooked and no leftovers more than 1 day old.
Despite this setback, she still is marching on and entertaining the hospital staff and anyone else that will listen to her.

I know this all sounds scary, but the good news is, the expanders are out and white blood cells can regenerate quickly. Let's hope she's out of her suite by Friday!

All of this is too reminicent of when my daughter was in ICU fighting for her life with bacterial meningitis. Having to wear a full haz mat suit with goggles and all, and "oh by the way, her skin is too sensitive and painful to touch", was something beyond comprehension. As my Callie made it through, so too shall Bonnie. We Manson girls are tough cookies and it'll take more than stupid Cancer to knock her down. Stupid cancer....

Stay tuned for more!

XO, Heather